A Childhood Interrupted Far Too Early
At just six years of age, when Eric should be worrying about school, friends, and playtime, hospital visits and an uncertain future have become his reality.
Instagram user @nmaarieex, who is helping share the six-year-old’s story, says Eric has been diagnosed with Adrenoleukodystrophy (ALD), a rare and progressive neurological disease that affects around 1 in 17,000 children.
Over time, ALD takes away a child’s ability to move, speak, and function independently. There is no cure, and treatment can only slow the disease and buy families more time.
Still Smiling, Still Full of Life
For now, Eric is still active and full of energy. His symptoms at the moment resemble ADHD, but doctors have confirmed that the disease will continue to progress. Even at this early stage, he requires round-the-clock care.
Eric’s mother, Selina, is a single parent of two. She works while caring for a child whose future is filled with medical uncertainty — a burden no parent should ever have to carry alone.
A Mother Doing Everything She Can
The family is currently living with relatives, doing all they can to stay afloat. Selina is bringing Eric to neurosurgeons for second opinions, arranging medical tests, and pursuing treatments that may help preserve his abilities and prolong his life.
But the costs are overwhelming. Medical bills, daily care needs, and living expenses continue to pile up, adding financial strain to an already emotional journey.
While Eric is still able to enjoy life, his family hopes to make the most of every moment. They take him to places he can experience, surround him with love, and create memories that will last far beyond today.
Understanding ALD: What the Disease Does
Adrenoleukodystrophy (ALD), according to Cleveland Clinic, is a genetic disorder linked to the X chromosome. It affects the nervous system and adrenal glands, and is part of a group of conditions known as leukodystrophies.
People with ALD are unable to break down certain fats called very-long-chain fatty acids (VLCFAs). These fats build up in the brain, nervous system, and adrenal glands, leading to inflammation and damage to the myelin sheath — the protective layer around nerve cells.
When myelin is damaged, progressive problems with movement, thinking, behaviour, and hormone regulation arise. ALD primarily affects males and often begins with behavioural or cognitive changes before rapidly worsening. Treatment focuses on slowing disease progression and improving quality of life.
How You Can Help Eric and His Family
Eric’s fight is not one his family should face alone.
OP @nmaarieex requests to help by sharing this fundraiser, keeping Eric and his family in your thoughts and prayers, and spreading the word so they can receive the support they urgently need.
If you wish to donate, contributions can be made via PayNow:
PayNow to: DoubleSB
📞 +65 8742 4785
Every share, every dollar, and every message of support helps lighten the weight this family is carrying — and reminds them they are not alone.
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