Loey-Dietz Syndrome Loey-Dietz Syndrome is a rare connective tissue disorder that Jovina, a cheerful and kind-hearted 8-year-old girl suffers from. Jovina was born with cogenital heart disease and clef palate. After undergoing genetic testing, doctors confirmed that she had Loey-Dietz syndrome. Following her diagnosis, Jovina has been attending follow-up treatment at NUH. The brave young … Continue reading Help 8-year-old Jovina, who suffers from Loey-Dietz syndrome, raise 160k for a major heart surgery